Monday, October 19, 2009
Update
Well, here we are again. We had waited three months from the last visit to get an update on my medical condition. On October 15th, I had a ct scan with contrast dye, blood work, and a doctor's appointment. Everything seemed to go smoothly, no allergic reactions, etc. My doctor was out of town, so I saw her PA. My mom came with me, and that eased my stress. I received the normal flu vaccination, and we got the results from the ct scan. The nodules that were once visible in May, were not visible at this time. From my mom and my understanding of what the PA explained, is that all my blood work levels had remained the same as in May, but we could no longer see the nodules on the scan. We are not sure what to make of that. It does not mean they aren't there, they are just playing hide and seek. And, the injections that I am on are controlling my symptoms, so our main goal now is to maintain a comfortable life. It seems to me that we have control of the situation at this time. Other than normal three month checkups, and my injections, there is nothing we need to do at this point. Which is a big sigh of relief. I am tired, but that is my body telling me to slow down. We will continue to keep everyone updated. Thank you for all of your thoughts and prayers!
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I wanted to contact you on behalf of the Caring For Carcinoid Foundation. I think that it is wonderful that you want to educate other people about carcinoid. I was also glad to read that your symptoms are being kept in check and your situation seems to be under control, I sincerely hope things remain positive for you in the future.
ReplyDeleteOne of our primary goals at the Caring for Carcinoid Foundation (www.caringforcarcinoid.org) is raising awareness. We admire that individuals such as yourself are willing to share their difficult story and help spread the word about carcinoid and related neuroendocrine tumors; it goes a long way in increasing visibility of this terrible disease to the public. Your words also give support and strength to those affected by these diseases.
If you get the chance, we’d love for you to visit our website. One of our most popular online support services is the Survivor Stories section of our webpage (http://www.caringforcarcinoid.org/carcinoid/survivorstories.asp#Survivor_Stories). It is through the stories of those affected that members of the community can draw hope, support, and courage. We would love for you to add your own story.
In addition to Survivor Stories, we also have a free electronic newsletter providing up-to-date information affecting the carcinoid community. You can look through our past issues here: http://www.caringforcarcinoid.org/news/cfcfeupdates.asp
Please don’t hesitate to contact any of our patient support staff, including Robert Roose (Robert.roose@caringforcarcinoid.org ), Ben Blackwood (ben.blackwood@caringforcarcinoid.org) or (Daniel.joo@caringforcarcinoid.org).
We also have some exciting social networking outlets in the works so expect to hear from us in the future.